Rough Day
Our little saint had a bit of a rough day today. He woke up at 4am crying and could not fall back to sleep all morning. I ended up moving him to my bed and cuddling him to try to comfort him the best I could. He only took 2 very short naps too and was so exhausted by 5pm that the crying started all over again until I got him in bed at 8. I am hoping he is not getting sick, so please say a little prayer for him. |
Lots of Visitors this Weekend
Another Busy Week
Tuesday...Physical Therapy (at home)
Wednesday... Occupational Therapy (at home)
Thursday...Feeding Therapy, Occupational Therapy (splints), and GJ Placement (all at PCH)
Saturday... Two Movement Lessons (Peoria)
Last week we got new splints for night sleeping. Unfortunately, they gave him a very bad sore on his hand so we are not putting them on. His OT will have to re-form them so there is not so much pressure in that area.
We also had the meeting with the DDD nurse on Friday and it went really well. She increased our weekly hours from 40 to 56 per week. This is great news because it means I can have his nurses work 10 hour days M-Friday. I am hoping to have them here until 5 so I can do homework with Olivia and make dinner!!! I am also going to try to work from home between all of the appointments and phone calls! Thank you for the prayers... they worked!!!
TEam Santino
They have already raised close to $5000 for Santino’s Movement Lessons. We hope to plan a short trip to Seattle with the money in the Fall too! There is a doctor there who specializes in Polymicrogyria, and we would love to have him look at Santino’s MRI and give us more information about what to expect and what we can do to keep his progress moving forward.
Thank you to all of the many wonderful prayer warriors who are fighting for Santino each and everyday through prayers, words, and actions. It is amazing how much good can come out of a very difficult situation. We are constantly reminded of the many angels living amongst us! It has truly changed our lives.